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Epilepsy12 & OPEN UK National Conference 2019 resources

On 17 June 2019, more than 150 health professionals working in support of paediatric epilepsy services and patient organisation representatives came together at the second Epilepsy12/OPEN UK National Conference with the aim of learning from each other and improving the care offered to children and young people with epilepsies. Watch our highlights video for a snapshot of the day and access posters and presentations from the conference, below.

The conference was chaired by Dr Sophia Varadkar and included a young people-led symposium, keynote speaker and related Q&A session, Epilepsy12 updates and a quality improvement (QI) showcase session with associated QI poster displays. The conference also marked the launch of the RCPCH Epilepsy Quality Improvement Programme (EQIP).

Feedback shows that 94% of delegates left the conference with ideas for improvement within their service. 99% of delegates who provided feedback said that they would be happy to attend future Epilepsy12/OPEN UK national conferences.

Scroll down to download the full schedule and posters displayed on the day.

Presentations from the conference

- Emma Sparrow, RCPCH CYP Engagement Team Manager, jointly with Epilepsy Youth Advocates

- Dr Richard Brown, Consultant Paediatrician, Cambridge University Hospitals NHS Trust, Chair of OPEN UK 

- Dr Colin Dunkley, Epilepsy12 Clinical Lead, Consultant Paediatrician, Sherwood Forest NHS T

Keynote presentation: The elephant of medication adherence (download below) - Professor Martin Kirkpatrick, Consultant Paediatric Neurologist and Clinic Lead, North of Scotland Child Neurology Network

- Dr Sutapa Biswas, Consultant Neurophysiologist, Chelsea and Westminster Hospital NHS Foundation Trust

 - Dr Amy Barker, ST5 Paediatric Trainee, Peterborough City Hospital

- Ms Kirsten Johnson, Epilepsy Specialist Nurse, Sherwood Forest Hospitals NHS Trust

What would you like to see at future conferences?

Please email the team with your ideas on topics that you would like presented or discussed at the next national conference on epilepsy12@rcpch.ac.uk.