How can we work with and involve children and young people in research? Whether you're a child or young person, or a health professional - we have collated the most useful resources from other organisations.
These resources complement the RCPCH Research Charter.
For young people and parents
Find studies that you or your child might find of interest or get involved in at UK Clinical Trials Gateway.
Nuffield Council on Bioethics has a number of resources:
For trainee paediatricians, nurses, consultants and SAS doctors
Engaging children, young people and their families in research
Nuffield Council on Bioethics:
Involving children and young people in decision making in research
- National Children’s Bureau have created
- NHS England and the British Youth Council have created a bitesize guide to
- North West Leicestershire District Council:
Supporting and communicating with children and young people
- has a range of free e-learning resources for professionals to support understanding disability and communication with disabled children and young people
- offers personal stories of health and illness to enable patients, families and health-care professionals to benefit from the experiences of others
- has created a range of resources about rights in healthcare including an easy read leaflet that talks about consent and confidentiality
- National Institute for Health Research:
Ethics and data confidentiality
- European Commission:
- Medical Research Council:
- National Society for the Prevention of Cruelty to Children:
Other resources you may find useful
- is focused on promoting health in schools and other youth settings
- has information to support understanding in medical trials
- have information about young people improving health through research
- Market Research Society:
- supports active public involvement in NHS, public health and social care research
- provides information about the Young Researchers Network
- provides a variety of information on children and clinical research
- evaluates how children and young people can benefit from designing, implementing and sharing findings from research
- United Nations International Children's Emergency Fund:
For more from RCPCH
For more information about research please contact the RCPCH Research & Evidence team at research@rcpch.ac.uk. Or, to find out more about involving children and young people contact: and_us@rcpch.ac.uk.