Rare disease

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BPSU study - Herpes simplex virus

BPSU surveillance of neonatal herpes simplex virus disease in infants less than 90 days of ages commenced in July 2019 and will run for 4.5 years. This study will assess the current disease burden of HSV to inform future practice on detection, prevention and management of this dangerous disease.

Resource

BPSU - 30th anniversary report (2016)

For over 30 years the British Paediatric Surveillance Unit has been facilitating research into childhood rare diseases and disorders. To mark this milestone and to celebrate the Unit's ongoing impact we published our 30 year anniversary report.

BPSU

Rare disease

Research

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BPSU study - Severe chronic fatigue syndrome / myalgic encephalitis (CFS/ME)

This BPSU study will collect information on all young people aged between five and 16 years who receive a diagnosis of severe Chronic Fatigue Syndrome or Myalgic Encephalitis (CFS/ME). The study aims to explore how many young people across the UK and Ireland have severe CFS/ME, the length of time fr...

Community child health

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BPSU study - Severe complications of enterovirus or human parechovirus infection

This BPSU study investigates severe complications of enterovirus (EV) or human parechovirus (HPeV). It is intended to improve our knowledge of the age-specific incidence, clinical presentation and management, as well describe the survival and rates of long-term complications of severe EV/HPeV infect...

Cardiovascular

Child and adolescent mortality

Infectious diseases

Intensive care medicine

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BPSU study - Food protein induced enterocolitis syndrome (FPIES)

This BPSU study investigates food protein induced enterocolitis syndrome (FPIES), a rare delayed type of food allergy which leads to repeated vomiting and other gastrointestinal symptoms up to several hours after a problem food (or baby formula) is eaten. There is very limited data on FPIES in the U...

Histio UK - Histiocytic Research Call [CLOSED]

Applications are invited for studies into the histiocytic disorder Paediatric Langerhans Cell Histiocytosis. Histio UK will consider scientific and clinical research on the epidemiology, pathogenesis, diagnosis, treatment and clinical care of patients with Paediatric Langerhans Cell Histiocytosis.

Award programme/theme

Project grant

Funding amount range

Under £50,000

Maximum duration

2 years

Submission deadline

1 November 2024

European Society for Paediatric Infectious Diseases (ESPID) - Infection Surveillance Research Grant [OPEN]

This is a new research grant by ESPID and INOPSU to support infection surveillance across two or more European countries. This grant aims to facilitate infection surveillance research in Europe by ESPID researchers.

Award programme/theme

Project grant

Funding amount range

Under £50,000

Submission deadline

31 December 2025

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BPSU study - Congenital ichthyosis

This two year, prospective BPSU study investigates the incidence, early management and outcomes at 12 months, of babies born with harlequin ichthyosis (HI) or collodion membrane (CM) born between 1 November 2018 and 31 October 2020. These are rare genetic conditions characterised by thick, tight sca...

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BPSU study - Sydenham's chorea

The first ever prospective surveillance of Sydenham's chorea in the UK and Ireland commenced in November 2018 and will run for two years. This study is being undertaken in collaboration with the Exeter Medical School and the Child and Adolescent Psychiatry Surveillance System. The study aims to exa...

News

Dr Shamez Ladhani appointed as Chair of the British Paediatric Surveillance Unit

20 August 2018

Shamez will take over from Dr Richard Reading in September. The BPSU office, study teams, and Scientific Committee extend their gratitude to Richard for his astute leadership over the past five years.